Once again, I apologize that its been awhile since i have been on here updating about Madison. So much has went on.
Madison had been still having issues with everytime she would use the bathroom, her heart rate would drop into the 40s and 50s. I had talked to one SMA mom and she said to try putting her back on continuous feeds and to had prune juice to her food. When i did that she went 12/13 days without having a spell at all. And then all of a sudden she had them again. I contacted her dietician in Cincinnatti, and they told me a different way to mix her food. Did that and she has done really good with no spells. And then today we gave her a lil bit of miralax because she hadnt used the bathroom yet and bout a hour after giving her the miralax, she had another spell. And whn I sit back and think about it, when she had all the other spells she had had miralax. So im going to not give her any at all and see how she does.
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