New Years Day

Wow, I cant believe Bj and I have been married for 5 years. Where does time go? My parents came over last night and watched Madison so we could go out to eat and celebrate. It was really nice gettn out just the 2 of us.

Madison has started going through a stage where she doesnt want to sleep at night. She wants to play instead. But thats perfectly fine with me. I just love spending all day everyday with her and watching how much she changes everyday. I have started putting her to bed around 9-930 now and she falls right to sleep and doesnt wake up. So maybe she just didnt want to go to bed at 8 every night like before. Lets just hope it doesnt get any later than 9-930. LOL.

Today has been a very relaxing day. Just sat at home all day spending time with Bj and Madison. Shes been a lil fussy the past few days but i believe its just where she wants attention. Cause as soon as u start talking to her or pick her up she starts smiling. I believe shes going to have my attitude. (oh lord, watch out) lol. She cant stand it if you are not paying her any attention.

After doing her treatments at 9 i put her back on her bipap and she fell right to sleep. Then about 20 mins later the alarm on the bipap started going off. I went to check and see why and the whole entire machine was off and wouldnt come back on. Of course i panicked because i had no clue what was wrong with it. But i called to Advanced Home Care and the guy brought us a new one. Now she is completely happy and sound asleep.

Well here are a few pictures from the past week. Hope u enjoy!!!

I absolutely just love her blue eyes. And them long eyelashes

Sound asleep after her bath. Way to cute. Love her to pieces

Madison has been really going through a stage where shes not wanting to go to sleep at night. She will sleep for about an hour and then wide awake. I dont know if its just something shes going through or if her bipap settings need to be adjusted.

I called Madisons pulmonologist today He cant really adjust it to high right now until she has a sleep study done. That will tell him exactly what her settings should be. Im hoping we can get it done before we have to go back to Cincinnati Childrens Hospital to see the doctors there. 

Madison has started talking a little more. Its not words you can understand but you just know shes trying so hard to talk. Im hoping i hear mama but its ok if i dont as long as shes doing good.

We took her today to have her fitted for her AFO's. We chose to have them done in pink since she seems to love that color. Shes such a girly girl. She has a fit if i take her hair bow out of her hair. I have to hook it to her bipap when she naps just so she thinks shes still wearing it. She is so spoiled.