Well we brought Madison home last Wednesday after we got our floors done and moved back in. She was so happy to be home. We did her room in pink. And we also put up her big girl bed cause she got to where she wouldnt sleep in her baby bed and plus it was getting just to hard for me to reach in and pick her up. I took her in her room for her to see it and she just lit up. Smiling like crazy. I laid her on her bed and she just giggled away. She was so happy. Every single night i put her in the bed she giggles. So needless to say i think she loves her bed. I will post pictures later of her room.
I took her today to get a xray to check her lungs. About 2/3 wks ago her right lung was a lil hazy so her pulmo changed her bipap settings and now he wanted to check and see how it looks. Lets hope and pray that they are clear. She did so good today also whn I took her to get the xray. She was a lil ill tonight but she had a big day. Anytime we take her out to the doctor she seems to be so tired for the rest of the day. Will post pictures soon.
Thursday, April 14, 2011
Wednesday, April 6, 2011
March Updates
Geez, i feel so bad for not updating any sooner. Alot has went been going on. Madisons sleep study results came back and the doctor wanted to lower her bipap settings, but shes been on those settings before and they didnt work for her so her actual pulmonologist agreed with me and kept the settings the way they were except changed the epap number from 8 to 5.
Maddie started sounding a little nasaly, but her stats were looking pretty decent. O2 was staying at 98 which is pretty good. But her pulmo wanted to start her on a antibiotic just to try to prevent a cold or any nasty virus. About 4 days into taking the meds, she started having episodes to where her heartrate and oxygen would drop into the 50s and 60s and the only thing that would calm her down is her bipap. Then the next day she had 2 episodes within a 30 min time period. But most of the time she also used the bathroom right after the episode or she was strainging. I was starting to get worried with that. We took her back to the pulmo and the dr ordered her to have a xray of her lungs. It showed her right lung was just a little hazy. So he upped her epap to 7. After he upped her settings and the antibiotic was out of her system she hasnt had anymore episodes. So im not sure if it was the antibiotic or her epap settings. Or even maybe just where she was having trouble using the bathroom. But shes doing great now. Her gastro dr said to give her pedialite and since then she doesnt seem to have any problems using the bathroom.
We decided to have our floors redone and have the carpet removed so it doesnt bother Madison, when it comes to her respiratory problems. We took her to stay at my moms while they did our floors. I have missed her soooo very much and cannot wait to get her home. We get to bring her home tomorrow (Wed) I decided i wanted to paint her bedroom pink and really fix it up with bright colors (since she loves bright colors) I cant wait for her to see it.
Madisons doctor called the other day to check and see how she was doing, and I explained to him that she is getting to where she cant be off the bipap for too long before she gets fussy and wants it back on. He upped her back up rate by 4 on her bipap settings. Im not sure if the reason she wants to stay on the bipap so much is because shes so use to not wearing it at our house and because Im not with her or if its the setttings. Since we changed the backup rate she seems to be doing ok. Thats all that i have right now. Going to head to bed so tomorrow will come and i can bring my baby home. Promise it wont be this long again when i update.
Maddie started sounding a little nasaly, but her stats were looking pretty decent. O2 was staying at 98 which is pretty good. But her pulmo wanted to start her on a antibiotic just to try to prevent a cold or any nasty virus. About 4 days into taking the meds, she started having episodes to where her heartrate and oxygen would drop into the 50s and 60s and the only thing that would calm her down is her bipap. Then the next day she had 2 episodes within a 30 min time period. But most of the time she also used the bathroom right after the episode or she was strainging. I was starting to get worried with that. We took her back to the pulmo and the dr ordered her to have a xray of her lungs. It showed her right lung was just a little hazy. So he upped her epap to 7. After he upped her settings and the antibiotic was out of her system she hasnt had anymore episodes. So im not sure if it was the antibiotic or her epap settings. Or even maybe just where she was having trouble using the bathroom. But shes doing great now. Her gastro dr said to give her pedialite and since then she doesnt seem to have any problems using the bathroom.
We decided to have our floors redone and have the carpet removed so it doesnt bother Madison, when it comes to her respiratory problems. We took her to stay at my moms while they did our floors. I have missed her soooo very much and cannot wait to get her home. We get to bring her home tomorrow (Wed) I decided i wanted to paint her bedroom pink and really fix it up with bright colors (since she loves bright colors) I cant wait for her to see it.
Madisons doctor called the other day to check and see how she was doing, and I explained to him that she is getting to where she cant be off the bipap for too long before she gets fussy and wants it back on. He upped her back up rate by 4 on her bipap settings. Im not sure if the reason she wants to stay on the bipap so much is because shes so use to not wearing it at our house and because Im not with her or if its the setttings. Since we changed the backup rate she seems to be doing ok. Thats all that i have right now. Going to head to bed so tomorrow will come and i can bring my baby home. Promise it wont be this long again when i update.
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